10 Stem cell Donor registry for your Allogeneic Stem cell transplantion donor search

Regenerative medicine using stem cells has a great advantage over alternative treatment like surgery, chemotherapy etc in that stem cell therapy has very fewer side effects than other treatment and most of the disease which is cured by alternative treatment are showing a positive result in clinical trials.

Stem cells that come from bone marrow or blood are routinely used in transplant procedures to treat patients with cancer and other disorders of the blood and immune system. To know about bone marrow stem cells refer my previous post on stem cell and their type.

What is Stem cell donor registry?

Bone Marrow stem cell donor registry is the collection of blood stem cell from an adult healthy donor for the purpose of Bone marrow transplant therapy to cure patients suffering from various diseases like Leukemia, Sickle-cell anemia, Perkinson’s Disease and various nervous disorder.

Bone Marrow Stem cell
Neoplastic lymphocyte cells in blood

Public stem cells is an non-profit organization which either are funded by volunteers peoples or aided by various government works to collect stem cell from Donor to form Bone marrow stem cell Bank which helps doctors and family members of the patients to search for matching donors for Bone marrow transplant therapy to cure diseases like Leukemia and Sickle-cell anemia. They are also involved in spreading awareness on the importance of Bone marrow stem cell donation for the purpose of stem cell therapy.

Why should I donate my stem cell?

Donating stem cell is not a monetized process instead it’s a volunteer act in which a health donor donate his stem cell for volunteer organization which preserves and donates it matching recipients who are in need of health stem cell for their treatments. Just like blood donation, Stem cell donation helps to save much life who are suffering from many diseases. Donating stem cell in Private banks have the advantage of the usage of our own stem cell for any future Stem cell treatment but it has its own disadvantages compared to Storing stem cell in Public stem cell banks. Check out the advantage and disadvantage of Public and Private Stem cell Banking. 

If you are getting Stem cell therapy or doing stem cell donation check out the things you need to know before going for Stem cell treatment or for donation.

Unlike blood donation, finding the Stem cell donor for your Stem cell Transplantation is very difficult because of lack of awareness in public regarding the importance of Stem cell Donation. I have listed below 10 Non-Profit Bone Marrow donor associations from all over the world which are either funded by public or from the government from different countries. These registry have a large collection of donor information which is available to the public with free of cost.

World Marrow Donor Association (WMDA): 

The World Marrow Donor Association (WMDA) is a voluntary organization of representatives of blood stem cell donor registries, cord blood banks, other organizations and individuals with an interest in blood stem cell transplantation.

WMDA was initiated as a program in 1988 by three pioneers in the field of transplantation: John Goldman (UK), E. Donnell Thomas (US) and Jon J. van Rood (NL). This led to the foundation of WMDA in 1994. Since then, WMDA has grown into a global association, representing 75 donor registries, 158 cord blood banks, 350 donor centers, and 1,615 transplant hospitals from 52 different countries. Since    January 2017 is Bone Marrow Donors Worldwide (BMDW) a service of WMDA.

WMDA fosters international collaboration to facilitate the exchange of high-quality blood stem cells for clinical transplantation worldwide and to promote the interests of donors. It has a Board and five Working Groups, namely the Donor Registry Working Group, the Quality Assurance Group, the Ethic Working Group, the Finance Working Group, and the Clinical Working Group. It has three types of membership, that is, full organizational membership, nonvoting organizational membership, and individual corresponding membership.

From January 1, 2017, World Marrow Donor Association (WMDA), Bone Marrow Donors Worldwide (BMDW) and NetCord are one organization.

Bone Marrow Donors Worldwide: 

Bone Marrow Donors Worldwide (BMDW) started in 1988, is an organization based in Leiden, Netherlands. BMDW is a voluntary collaborative effort of stem cell donor registries and cord blood banks whose goal is to provide centralized information on the HLA phenotypes and other relevant data of unrelated stem cell donors and cord blood units and to make this information easily accessible to the physicians of patients in need of a hematopoietic stem cell transplant.

BMDW participants (as of February 2014) comprise 72 hematopoietic cell donor registries from 52 countries, and 48 cord blood banks from 33 countries. Taking all these registries together, the BMDW database includes almost 22.5 million stem cell donors and 605,000 cord blood units, making it the largest database in the world.

European society for Blood and Marrow Transplantation (EBMT): 

The European society for Blood and Marrow Transplantation (EBMT) is a non-profit organization that was established in 1974 in order to allow scientists and physicians involved in clinical bone marrow transplantation to share their experience and develops co-operative studies. The EBMT aims to promote all aspects associated with the transplantation of blood stem cells from all donor sources and donor types including basic and clinical research, education, standardization, quality control, and accreditation for transplant procedures.

EBMT’s headquarter is located in Barcelona, Spain.

National Marrow Donor Program (NMDP):

The National Marrow Donor Program (NMDP) is a nonprofit organization founded in 1986 and based in Minneapolis, Minnesota that operates the Be The Match Registry of volunteer hematopoietic cell donors and umbilical cord blood units in the United States. Over the past 25 years Be The Match, operated by the National Marrow Donor Program (NMDP), has managed the largest and most diverse marrow registry in the world.

Marrow Donor Registry India (MDRI): 

The Marrow Donor Registry India (MDR) is India’s first Non-Profit NGO which maintains a computerized database of voluntary, unrelated stem cell donors and facilitates blood Stem Cell transplants for patients with life-threatening blood diseases. It recruits donors, maintains a Registry of volunteer potential donors and initiates a search for HLA typed stem cell donors for a patient requiring a transplant anywhere across the globe.

DATRI: 

DATRI is a not-for-profit organization from India that was founded in 2009 with a mission to save lives of those suffering from life-threatening blood disorders like Blood Cancer, Thalassemia, Aplastic Anemia etc.

DATRI is working towards creating a wide and diverse database of potential blood stem cell donors that can be accessed by any patient, living anywhere in the world, in need of a blood stem cell transplant.

DATRI is registered member with World Marrow Donor Association (WMDA) and follows WMDA guidelines and processes. DATRI is also a recognized member of Bone Marrow Donors Worldwide (BMDW).

Asian American Donor Program (AADP):

 Asian American Donor Program (AADP) is a community-based nonprofit organization specialized in conducting outreach and donor registration drives in and with diverse communities. AADP is an official recruitment center of the Be The Match registry. AADP is dedicated to increasing the availability of potential stem cells donors for patients with life threatening diseases curable by a stem cell transplant.

AAD’s office is located in 2169 Harbor Bay Parkway Alameda, CA, USA.

South African Bone Marrow Registry (SABMR):

 The South African Bone Marrow Registry (SABMR) is a registered Non-Profit Organisation based out in South Africa to help African community to find matching donors for patients needing a bone marrow transplant and who do not have a match within their own families.

The SABMR was founded by Professors Ernette du Toit and Peter Jacobs in 1991. It was accepted as a member of the World Marrow Donor Association (WMDA) and designated an internationally recognized Registry. 

African Caribbean Leukaemia Trust (ACLT): 

African Caribbean Leukaemia Trust (ACLT) is an independent charity based in the UK which strives to provide a lifeline for those suffering from blood-related cancers such as Leukemia and other life-threatening disorders. The ACLT aims to raise awareness on stem cell, blood and organ donation within UK population, with a particular focus on the Black and Mixed race communities. They work closely with in this area due to the severe lack of individuals signed to the registers from these communities.

ACLT is a 30+ times award winning leading British blood cancer charity, founded in 1996 by Beverley De-Gale and Orin Lewis.

Black Bone Marrow:

Black Bone Marrow is an association helping to create African Americans Bone marrow registry. It is mainly focused on creating the registry for Africans within their community so that the search for the donors within the same community becomes easier.

Australian Bone Marrow Donor Registry (ABMDR): 

The Australian Bone Marrow Donor Registry (ABMDR) is a public company limited by guarantee under the Australian Corporations Law and a Registered Charity under the Australian Charities and Not-for-profits Commission Act 2012 (Cth) (ACNC Act). The ABMDR, including cord blood operations, is funded by the Commonwealth, State and Territory governments through a variety of contracts.

ABMDR is responsible for the recruitment of volunteer bone marrow/blood stem cell donors and the administrative management of the National Cord Blood Collection Network of public cord blood banks in Australia.

ABMDR helps Australian and international patients who are in need of a stem cell transplant and have not found a donor among their relatives. The ABMDR National Office is based in Sydney where the staff works in close association with the Australian Red Cross Blood Service.

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